Fibrosing Mediastinitis (FM)

2 members Latest Activity: Oct 1, 2012

Fibrosing mediastinitis, also known as sclerosing mediastinitis or mediastinal fibrosis, is a disorder characterized by an excessive fibrotic…

Metastatic Breast Cancer Support

5 members Latest Activity: Apr 19, 2011 Metastatic Breast Cancer is a serious complication of breast cancer characterized by expansion of cancerous cells from the breast to other areas of…

Reflex Sympathetic Dystrophy

3 members Latest Activity: Sep 23, 2012

Reflex Sympatethic Dystrophy is a chronic pain condition that is caused by a triggering of the auto immune system that leads to an immune…

Mosaic Triploidy

2 members Latest Activity: Oct 7, 2012

Triploidy is a rare lethal chromosome abnormality caused by the presence of an entire extra set of chromosomes. A fetus with triploidy has 69…

Myoclonic Astatic Epilepsy

2 members Latest Activity: May 27, 2011 Myoclonic astatic epilepsy, also known as Doose syndrome, is a generalized idiopathic epilepsy. Generalized means that it affects both hemispheres of…

Greig cephalopolysyndactyly syndrome

2 members Latest Activity: Jan 8

Greig cephalopolysyndactyly syndrome (GCPS) is a rare genetic disorder characterized by physical abnormalities affecting the fingers and…

Meniere's Disease

2 members Latest Activity: 19 hours ago

Meniere's disease is a disorder of the inner ear that causes spontaneous episodes of vertigo — a sensation of a spinning motion — along with…

Cerebellar Hypoplasia

3 members Latest Activity: May 6, 2012

Cerebellar Hypoplasia is a developmental disorder characterized by the incomplete or underdevelopment of the cerebellum. It may be…

Raynaud's Disorder

12 members Latest Activity: on Sunday

Raynaud's is a rare disorder that affects the arteries. Arteries are blood vessels that carry blood from your heart to different parts of…

Cerebral Palsy

3 members Latest Activity: Nov 14, 2011 Cerebral palsy (CP) is an umbrella term encompassing a group of non-progressive, non-contagious motor conditions that cause physical disability in…

Autism

2 members Latest Activity: May 19, 2011 Autism is a disorder of neural development characterized by impaired social interaction and communication, and by restricted and repetitive behavior.…

Subaxial cervical spine (C3-C7) injuries

2 members Latest Activity: 22 hours ago

Injuries of the subaxial cervical spine (C3-7) are among the most common and potentially most devastating injuries involving the axial…

Natural Healing Group

2 members Latest Activity: Jan 8

This group is focused on ways to heal  rare diseases naturally. Members may present different natural remedies, diet and treatments. The…

Idiopathic pulmonary fibrosis

2 members Latest Activity: Oct 18, 2012

Idiopathic pulmonary fibrosis (IPF) (or cryptogenic fibrosing alveolitis (CFA) or idiopathic fibrosing interstitial pneumonia) is a chronic,…

Pituitary Brain Tumors

4 members Latest Activity: Sep 26, 2012

The bean-sized pituitary gland, located at the base of your brain, controls growth-regulating hormones, your metabolism, your stress response and…

HHT (Hereditary Hemorrhagic Telangiectasia)

4 members Latest Activity: Jul 11, 2012

HHT Quick Facts 

HHT is an inherited blood vessel…

Addison’s disease

2 members Latest Activity: Mar 22

Addison’s disease is a rare chronic endocrine disorder in which the adrenal glands do not produce sufficient steroid hormones and often…

Congenital Sucrase Isomaltase Deficiency (CISD)

2 members Latest Activity: Mar 26, 2012

Congenital Sucrase-Isomaltase Deficiency (CSID) is an autosomal recessive disease of the small intestine characterized by a failure to absorb…

Congenital Vascular Malformation

2 members Latest Activity: Dec 8, 2011 These are congenital malformations that consist of capillary, venous, arterial, or lymphatic abnormalities. Vascular malformations are present at…

Juvenile Idiopathic Arthritis

2 members Latest Activity: Mar 24, 2012 Juvenile Idiopathic Arthritis (JIA) (aka Juvenile Rheumatoid Arthritis JRA) is the most common form of persistent arthritis in children.