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  • Gastroparesis

    7 members Latest Activity: on Sunday

    This group seeks to unite those with gastroparesis.  It was established as a place where all those living with GP can come to…

  • Mitochondrial diseases

    3 members Latest Activity: May 20

    Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood…

  • Langer-Giedion syndrome

    3 members Latest Activity: May 15

    Langer-Giedion syndrome is a condition that causes bone abnormalities and distinctive facial features. People with this condition have…

  • Hyperparathyroidism

    3 members Latest Activity: May 15

    Hyperparathyroidism is an excess of parathyroid hormone in the bloodstream due to overactivity of one or more of the body's four parathyroid…

  • MTHFR Defect

    3 members Latest Activity: May 15

    MTHFR (MethyleneTetraHydroFolate Reductase) most often refers to a genetic mutation that inhibits the body's ability to methylate or convert folic…

  • Rheumatoid Arthritis

    5 members Latest Activity: May 15

    Rheumatoid arthritis is a type of chronic arthritis that typically occurs in joints on both sides of the body (such as hands, wrists, or…

  • Hemochromatosis

    2 members Latest Activity: May 19

    Hemochromatosis is an iron disorder where the body simply loads too much iron. This action is genetic and the excess iron, if left untreated, can…

  • Cerebellar Hypoplasia

    3 members Latest Activity: May 6, 2012

    Cerebellar Hypoplasia is a developmental disorder characterized by the incomplete or underdevelopment of the cerebellum. It may be…

  • Schwannomatosis

    2 members Latest Activity: May 15

    Schwannomatosis is when the nerve cells outer layer (schwann cells) create tumors which squeeze on the nerve.  This creates chronic…

  • Brain Tumor - Brain Injury

    6 members Latest Activity: May 15

    A Brain Tumor took 2/3 of my brain, but primarily my left frontal lobe where are your reasoning and judgement transmits. Am here and would…

  • Myoclonic Astatic Epilepsy

    3 members Latest Activity: May 15

    Myoclonic astatic epilepsy, also known as Doose syndrome, is a generalized idiopathic epilepsy. Generalized means that it affects both hemispheres…

  • Mod Squad

    2 members Latest Activity: May 19

    A group for the Moderator Team.

  • Chronic Paroxysmal Hemicrania (CPH)

    2 members Latest Activity: May 15

    CPH is a rare form of headache characterized by severe throbbing, claw-like, or boring pain usually on one side of the face; in, around, or behind…

  • Sleep Apnea

    2 members Latest Activity: May 15

    Open to all, but especially to people who suffer from Sleep Apnea of all kinds; central or obstructive. To discuss remedies, stories and provide…

  • Idiopathic Pulmonary Hemosiderosis

    2 members Latest Activity: May 15

    A group for patients, caregivers and friends with information about IPH

  • Colloid Cyst of the Third Ventricle

    2 members Latest Activity: Jul 29, 2014

    A colloid cyst of the third ventricle is a benign epithelial lined cyst with characteristic imaging features. Although usually asymptomatic, they…

  • Multiple Sclerosis Group

    3 members Latest Activity: May 18

    Multiple Sclerosis is an autoimmune disease that affects the central nervous system, caused by damage to the myelin sheath, the protective…

  • Basal cell carcinoma

    3 members Latest Activity: May 15

    Basal cell carcinoma is a type of skin cancer. Basal cell carcinoma begins in the basal cells — a type of cell within the skin that produces new…

  • Spinal stenosis

    3 members Latest Activity: Jan 31, 2014

  • Meniere's Disease

    3 members Latest Activity: Feb 13

    Meniere's disease is a disorder of the inner ear that causes spontaneous episodes of vertigo — a sensation of a spinning motion — along with…



Blog Posts

Life Forever Altered

Posted by MelissaRVH on May 12, 2015 at 6:45am 0 Comments

I did not use to be the kind of person who shares personal information, but things have recently changed for me.  In February 2014, I spent a week in the hospital and was diagnosed with gastroparesis.  I am guessing most…



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