Heres some things you can do to Help


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Members, this site was conceived as a place for people who need support but who have a condition not yet covered by one of our communities. We also hope that participation on this site can help us make choices about which communities to start next.

If you look at our growing communities list, you will see that a number of conditions have the blue f for Facebook next to the name of the condition. These are conditions that have not yet become a Ben’s Friends community, but we are attracting followers (and future community members) on Facebook in anticipation of starting those communities.

If you would like a community for your condition, here are some things you can do to help get one started:

  1. Form a subgroup for your condition. Bring those you meet with your condition on the internet or on Facebook to the group, so that we can gauge community interest.

  2. Let us know if you or other members of your group would be interested in managing a Facebook page for your condition. This involves regular posting of informational and supportive material for page viewers. We have an active FB admin group, where you can receive training.

  3. Let us know if you or other members of your group would be interested in moderating an online community for your condition. Please review our guidelines carefully to make sure that you understand and can abide by them, as all communities must follow our stated guidelines.

  4. Point us to any relevant foundations who may be interested in partnering with us to create a new community for your condition.

Any questions? Please leave a comment.