You have come to the right place!
This site is for people struggling with Rare Diseases. Our goal is to connect you with others so you don't feel alone or don't want to overwhelm your family.
Or as I put it VENT!!
The Chat Room is open, just send a message to have someone meet you there, it's Live! A pop up window for Chat appears if you click on middle tab in bottom right corner.
You also have the option not to be seen online by clicking the green button in bottom right corner.
This site is built for the patient, caregivers ,spouses, parents, siblings and friends. Please no use of any vulgarity or hate, and please only add tasteful photos, Have Fun! :)
*** Please keep content in English only, (use the translate function on your computer), all nationalities are welcome, Thanks!***