Welcome! You're not alone.
If your family has been affected by Rare Diseases, consider Ben's Friends Rare Diseases your second home.
Read More from our First-Time-User Guide
Ben's Friends Patient Communities - support group for patients affected by rare diseases
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Join us as we celebrate Rare Disease Day 2014 this February (28th)!
Be a part of BensFriends.org and let everyone in the world with a rare disease know that there is a safe place to go and connect with others.
"We're In This Together: Stories & Tips from Patients with Rare Diseases" can be found HERE.
Rarediseases.Benfriends.org serves as an "incubator" for new communities of all diseases that do not yet have a dedicated community. Initially, a group for each rare disease is created and when the group gets larger, a dedicated community will be developed.
Rarediseases.Bensfriends.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with rare disease.
If you would like to work with us on expanding one of our groups to be a fuller community, please email us at email@example.com
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
Does anyone have facet arthopathy? I was just told that I have it and my rheumologist said that there's nothing to be done. I'm now looking for a new Dr.I'm looking for any info on this, please help me. Thanks!Continue
Tip of the Cap to my grandfather, Hank "Papa" McFadden, who passed away peacefully last night.He loved monster trucks and cooking shows. He always wore Vans tennis shoes and let us watch wrestling when we were kids. It was all the chocolate milk we…Continue
I just wanted to let everyone know where we are financially after the two fundraisers. We did the on-site fundraiser that you all saw on your homepage. Thank you so much for all of your donations!!!And then we did this one on Indiegogo for people…Continue
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to firstname.lastname@example.org.