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If your family has been affected by Rare Diseases, consider Ben's Friends Rare Diseases your second home.
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Does Your Rare Disease Pain Have You Considering Suicide?
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Birthdays
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Blog Posts
April 2013 Community Newsletter
Posted by Ben Munoz on April 24, 2013 at 5:30pm 0 Comments 0 Likes
Dear Rare Diseases Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
Those who have listened to Scott’s …
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Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast
Posted by Armando Abrero on April 22, 2013 at 5:25am 0 Comments 0 Likes
ClinicalTrials.gov Studies
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What is Rarediseases.Bensfriends.org?
Rarediseases.Benfriends.org serves as an "incubator" for new communities of all diseases that do not yet have a dedicated community. Initially, a group for each rare disease is created and when the group gets larger, a dedicated community will be developed.
Rarediseases.Bensfriends.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with rare disease.
If you would like to work with us on expanding one of our groups to be a fuller community, please email us at info@bensfriends.org
Groups
Forum
Everyone please read, as we are having a problem with spammers
Started by Ben Munoz in General May 4. 0 Replies 0 Likes
All moderators and founders of Ben's Friends work very hard to keep spammers off the site, however their methods of applying for membership get more sophisticated each day. Just on this site, we must decline 25-50, maybe more, a day. There are…Continue
Ben's Friends was the blog topic for the tenth largest Pharmaceutical company in the world, Eli Lilly!
The Gender Gap in Pain
Started by Ben Munoz in General Mar 21. 0 Replies 0 Likes
The New York Times Sunday Review - The Opinion Page By LAURIE EDWARDS Published: March 16, 2013Source: …Continue
Our Newest Communities
Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities,Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
Latest Activity
Patti G commented on Ben's Friends Group's group BOOK CLUB"For a fun 'escape' I recently read, Tapestry of Fortunes…"
Shirkami left a comment for Scott Orn"Oye, I had no idea I had a few spelling errors in my last comment. *facepalms* I was half…"
Shirkami left a comment for Rick Bruce"Thank you for the warm welcome, Rick Bruce.
Warmth is very much on my "to get" list,…"
Rick Bruce left a comment for Shirkami"A Warm Welcome to you Shirkami,
I'm Rick Bruce and I kicked this forum off a while back.…"
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Best of Ben's Friends
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What is Best of Ben's Friends?
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.
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This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Ehlers-Danlos Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Guillain-Barre Syndrome (GBS)
Lupus
Lyme Disease
Multiple Myeloma
Myositis
Narcolepsy
Nephrotic Syndrome
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Sjogren's Syndrome
Synovial Sarcoma
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
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