Welcome! You're not alone.

If your family has been affected by Rare Diseases, consider Ben's Friends Rare Diseases your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Read More from our  First-Time-User Guide

Ben's Friends Patient Communities - support group for patients affected by rare diseases

Need a Doctor or Specialist?

Does Your Rare Disease Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Need a Second Opinion?


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


There are no birthdays today

Blog Posts

A Doctor Explains How Conventional Medicine Got Autoimmune Diseases All Wrong

Posted by Armando Abrero on April 30, 2014 at 9:38am 0 Comments

Another one of those finds I'd like to share with everyone here.…


Community Newsletter

Posted by Ben Munoz on March 4, 2014 at 12:00am 0 Comments

Dear RareDiseases Family and Friends,

We're very happy to announce that we were just approved as an official nonprofit by the IRS!!
This means that we are eligible for corporate…

ClinicalTrials.gov Studies

Loading… Loading feed

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter are not allowed in the Chat Room.   
5. Specific doctor or hospital names mentioned in a negative context, for legal reasons.    
Specific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
Thanks for your cooperation.

Community Moderators






Started by Kathy Jennings in General. Last reply by dancermom on Monday. 1 Reply

I'm just starting out, trying to find freinds who went throught the only HMO ((Besides UC) in CA accepting TMJ surgical patients still suffering. This is a serious matter. I really need help.

Support Ben's Friends Through Amazon Smile for Free!

Started by Scott Orn in General Jun 10. 0 Replies

Dear Ben's Friends Community Members,Amazon is running a new promotion for Amazon Smile,…Continue

New Ben’s Friends Facebook Page for Caregivers

Started by dancermom in General. Last reply by Elisa Farley Jun 6. 2 Replies

We would like to announce a new Ben’s Friends Facebook group just for Caregivers, the “Caregiver Support Community”: …Continue


Started by Rob Lawrence in General. Last reply by dancermom May 22. 1 Reply

Is there anyone here dealing with "Adhesive" Arachnoiditis? It seems to be extremely hard to find anyone that knows what this is and what to expect, I guess I'm kinda a loner here.

Mobile App and E-Book Available for Download!

Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

What is Rarediseases.Bensfriends.org?

Rarediseases.Benfriends.org serves as an "incubator" for new communities of all diseases that do not yet have a dedicated community.  Initially, a group for each rare disease is created and when the group gets larger, a dedicated community will be developed.

Rarediseases.Bensfriends.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with rare disease.

If you would like to work with us on expanding one of our groups to be a fuller community, please email us at info@bensfriends.org

Latest Activity

Sophia joined Ben Munoz's group

Colloid Cyst of the Third Ventricle

A colloid cyst of the third ventricle is a benign epithelial lined cyst with characteristic imaging…See More
15 hours ago
Sophia liked Ben Munoz's group Colloid Cyst of the Third Ventricle
15 hours ago

Ben Munoz posted a group

Colloid Cyst of the Third Ventricle

A colloid cyst of the third ventricle is a benign epithelial lined cyst with characteristic imaging…See More
22 hours ago
dancermom replied to Kathy Jennings's discussion HFM
"I'm sorry, HFM, that is probably too specific for this website. If you google "TMJ…"
Scott Orn left a comment for DanaBell86
"hi Dana -  Huge welcome to the community! This is a great place! One tip, if you have specific…"
DanaBell86 commented on MyGreatBigsGotIt's photo

My Beautiful Daughter

"What a BEAUTIFUL picture!!!! You can see it in her face how happy she is. I too have Raynauds…"
dancermom left a comment for DanaBell86
"Hi, Dana, I don't think Fibro has a Raynauds subgroup yet, but our Lupus and Erythromelalgia…"
Profile IconDanaBell86, WyoJane and Agape's Mom joined Rare Diseases - Ben's Friends Online Support Group

Blog for Bens Friends.org

Loading… Loading feed

Best of Ben's Friends

Loading… Loading feed

What is Best of Ben's Friends?

Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.



Help Ben's Friends

Like, Follow & Forward Us!

Follow Me on Pinterest

Join Ben's Friends Newsletter


  • Add Photos
  • View All
"To Know the Joy of Giving"

To Support RareDiseases.BensFriends.org, Click an Ad. Or Two.

Partners and Awards

BensFriends.org Patient Community

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service