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Does Your Rare Disease Pain Have You Considering Suicide?
First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.
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May 2012 Community Newsletter
Posted by Ben Munoz on May 26, 2012 at 9:37am 0 Comments 0 Likes
Dear Friends and Family of RareDiseases,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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OUR ONLINE PRESENCE IS GROWING!!!
Posted by Armando Abrero on May 22, 2012 at 7:13am 0 Comments 0 Likes
OUR ONLINE PRESENCE IS GROWING!!!
Check out this link to view Ben's Friends FB-Twitter Milestone.…
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What is Rarediseases.Bensfriends.org?
Rarediseases.Benfriends.org serves as an "incubator" for new communities of all diseases that do not yet have a dedicated community. Initially, a group for each rare disease is created and when the group gets larger, a dedicated community will be developed.
Rarediseases.Bensfriends.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with rare disease.
If you would like to work with us on expanding one of our groups to be a fuller community, please email us at info@bensfriends.org
Forum
Nutrition thoughts etc.
Started by JeannieSB in General May 19. 0 Replies 0 Likes
How A Doctor Cured Her Terminal Illness Using Food AloneBefore and after photos of Dr. Terry Wahls: In 2003 Terry Wahls, M.D., was diagnosed with secondary progressive multiple sclerosis and soon became dependent upon a tilt-recline wheelchair.…Continue
Twitter Chat
Started by John "JC" Colyer in General. Last reply by John "JC" Colyer May 18. 2 Replies 0 Likes
Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue
What would you do to comfort a sick friend?
Started by Armando Abrero in General. Last reply by Donata Allen May 13. 1 Reply 1 Like
"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end what cheers up a sick person.I will be compiling…Continue
Can we get to know the moderators in all sites here?
Started by Swami Jim in General. Last reply by Donata Allen May 13. 3 Replies 2 Likes
Hi all! I know a few of you already. I'm already members of 4 sites here, and I am a moderator @avmsurvivors.org. Can we get to know more of the other moderators as One big team? Perhaps we can pull resources together and help each other. I am quite…Continue
Latest Activity
jadkins00 joined Ben Munoz's group
Eosinophilic Esophagitis
Eosinophilic esophagitis (EE) is an allergic reaction in the esophagus, the tube that carries food…See More
Ben Munoz posted a blog postMay 2012 Community Newsletter
Dear Friends and Family of RareDiseases,We are so excited we cannot wait to tell you about how our…See More
John "JC" Colyer commented on John "JC" Colyer's group Affirmations and Quotes"Don’t base your relationship decisions off of the advice of people who don’t have to…"
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Acute Disseminated Encephalomyelitis (ADEM)
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