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If your family has been affected by Rare Diseases, consider Ben's Friends Rare Diseases your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Read More from our  First-Time-User Guide

Ben's Friends Patient Communities - support group for patients affected by rare diseases

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Does Your Rare Disease Pain Have You Considering Suicide?

First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
for members in the United States, or for international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.


Blog Posts

A Doctor Explains How Conventional Medicine Got Autoimmune Diseases All Wrong

Posted by Armando Abrero on April 30, 2014 at 9:38am 0 Comments

Another one of those finds I'd like to share with everyone here.…


Community Newsletter

Posted by Ben Munoz on March 4, 2014 at 12:00am 0 Comments

Dear RareDiseases Family and Friends,

We're very happy to announce that we were just approved as an official nonprofit by the IRS!!
This means that we are eligible for corporate…

ClinicalTrials.gov Studies

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Community Moderators






Started by Kathy Jennings in General Jul 13. 0 Replies

I'm just starting out, trying to find freinds who went throught the only HMO ((Besides UC) in CA accepting TMJ surgical patients still suffering. This is a serious matter. I really need help.

Support Ben's Friends Through Amazon Smile for Free!

Started by Scott Orn in General Jun 10. 0 Replies

Dear Ben's Friends Community Members,Amazon is running a new promotion for Amazon Smile,…Continue

New Ben’s Friends Facebook Page for Caregivers

Started by dancermom in General. Last reply by Elisa Farley Jun 6. 2 Replies

We would like to announce a new Ben’s Friends Facebook group just for Caregivers, the “Caregiver Support Community”: …Continue


Started by Rob Lawrence in General. Last reply by dancermom May 22. 1 Reply

Is there anyone here dealing with "Adhesive" Arachnoiditis? It seems to be extremely hard to find anyone that knows what this is and what to expect, I guess I'm kinda a loner here.

Mobile App and E-Book Available for Download!

Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

What is Rarediseases.Bensfriends.org?

Rarediseases.Benfriends.org serves as an "incubator" for new communities of all diseases that do not yet have a dedicated community.  Initially, a group for each rare disease is created and when the group gets larger, a dedicated community will be developed.

Rarediseases.Bensfriends.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with rare disease.

If you would like to work with us on expanding one of our groups to be a fuller community, please email us at info@bensfriends.org

Latest Activity

Scott Orn left a comment for Denis
"Welcome Denis - One tip, if you have specific questions it's best to start a New…"
dancermom left a comment for Denis
"Welcome, Denis, I look forward to hearing more or your story."
Denis is now a member of Rare Diseases - Ben's Friends Online Support Group
Sophia left a comment for dancermom
"Thank you for the warm welcome dancermom. So sorry for this belated reply. Had to go to the cancer…"
Scott Orn left a comment for Sophia
dancermom left a comment for TEDDY
"Hi, Teddy, did you join TN yet?"
dancermom left a comment for Sophia
"Welcome, Sophia, I hope you will join our Von Willbrand's community. There is a link to it in…"
Profile IconTEDDY and Sophia joined Rare Diseases - Ben's Friends Online Support Group

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Best of Ben's Friends

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What is Best of Ben's Friends?

Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.



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