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First take a deep breath, then call the National Suicide Prevention Hotline immediately. 1-800-273-TALK
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Birthdays Tomorrow

Blog Posts

Life Forever Altered

Posted by MelissaRVH on May 12, 2015 at 6:45am 0 Comments

I did not use to be the kind of person who shares personal information, but things have recently changed for me.  In February 2014, I spent a week in the hospital and was diagnosed with gastroparesis.  I am guessing most…


ClinicalTrials.gov Studies

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Community Moderators

 Madere (Dancermom)




raynauds phenomenon

Started by rellieb in General. Last reply by Madere (dancermom) May 15. 1 Reply

I have cold clammy,sweaty hands & feet. I've recently seen my doctor due to my feet turning blue & lots of pain in fingers. I sometimes feel like I'm walking on ice breaks. I consistently have cold feet that can go tingling & numb. I…Continue

Want a community for your condition? Here are some things you can do

Started by Madere (dancermom) in General May 15. 0 Replies

Members, this site was conceived as a place for people who need support but who have a condition not yet covered by one of our communities. We also hope that participation on this site can help us make choices about which communities to start…Continue


Started by Christine in General. Last reply by Madere (dancermom) Nov 18, 2014. 1 Reply

Hi everyone, I recently have been diagnosed with a skull based Chordoma. Chordomas are 1 in a million. They are rare and that means there have been few studies. A panel of top surgeons met this last friday and a Dr Akagami has agreed to see me and…Continue

myotonic dystrophy

Started by rena in General. Last reply by christina green Sep 2, 2014. 1 Reply

HiI was wondering if anybody else had Myotonic Dystrophy as I am not really sure about it. My real Dad had this disease tho I wasn't in contact he died nearly a year ago. I got a copy of his death certificate and saw he had DM. My mum suggested I…Continue

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