Rare Diseases Support Community

Rarediseases.Benfriends.org is a place where members can create a group for those conditions that do not yet have a dedicated community. It all begins here. Start a group by clicking the Groups tab above. Invite others to join. Post discussions in your group to build your community. Please note that inactive groups will be removed after six months to make room for new groups.

Share with us the treatments that had helped you resolve your symptoms.

Join the Rare Disease discussion forum. Open discussion about issues, stories, treatments you had.

Feeling down? Need to rant? This is the place!

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them