General

Want a community for your condition? We have over 30 Communities already perhaps one fits your needs. We are using this site to determine which we should open next. Your input and interest is critical to our planning Photos Member Photos and videos Rare Disease 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

Topic	Replies	Views	Activity
About the General category General	0	1300	September 11, 2016
From Isolation to Connection: The Role of Community Support General	0	2	December 19, 2024
See How Ben's Friends Changes Lives + Double Your Impact General	0	1	December 16, 2024
Exciting Update: Double Your Impact for Rare Disease Support! General	0	1	December 13, 2024
This Giving Tuesday, Make Sure No One Faces Rare Disease Alone General	0	1	December 2, 2024
See How Our Community is Changing Lives General	0	1	November 24, 2024
Become a Champion for Our Rare Disease Community General	1	1	November 19, 2024
Join Us in Strengthening Our Rare Disease Community General	1	3	November 15, 2024
An Opportunity to Strengthen Our Rare Disease Community General	0	1	November 13, 2024
Screen names - Ben's Friends values your privacy General	0	536	July 20, 2021
Rare Disease Diagnosis: Difficulties and Advancements General	0	845	November 13, 2020
Ben Munoz shares the story of Ben’s Friends in RARECast General	0	626	November 13, 2020
Crisis Help Line General	0	629	October 27, 2020
IgG4-related disease (IgG4-RD) group urgently needed General	2	687	May 31, 2020
Don’t Get Mad, Get Proactive: A Covid-19 Weapon for YOU General	0	696	March 20, 2020
Is there any new Dercum's Disease Info? General	2	896	August 27, 2019
Our communities Available for Rare diseases Want a community for your condition?	0	1472	September 12, 2016
Heres some things you can do to Help Want a community for your condition?	0	2172	September 12, 2016
Nate Photos	0	1278	November 17, 2015
Dercum's Disease and Fibromyalgia General	0	3808	June 9, 2015
Lots of life changes General	2	1274	June 7, 2015
To better serve you, we will be closing Blogs shortly General	0	1214	June 6, 2015
Dsc00171 Photos	0	1237	May 19, 2015
Raynauds phenomenon General	1	1306	May 15, 2015
Want a community for your condition? Here are some things you can do General	0	1118	May 15, 2015
Life Forever Altered General	0	1167	May 12, 2015
Partial complex seizures/predilection for aneurysms General	0	1260	February 18, 2015
Tacoma Art Museum Photos	0	1250	January 20, 2015
Lucy hat and mouse Photos	0	1301	January 20, 2015
Ocb Photos	0	1316	January 20, 2015