Rare Diseases Support Community

Is there any new Dercum's Disease Info?


I haven’t been following the forums for a few years and wondered if there’s any new information or treatments for Dercum’s Disease?

Mine has been getting worse lately, possibly due to weather, but it’s a little bit hard to handle, so I thought I’d reach out.

Thank you in advance! :wink:


I wish I could help you. I haven’t heard of any new developments. I wish like yourself there was. I myself are struggling with dercum’s disease. Things aren’t improving for me. I have recently had 12 lipomas removed. But with no improvement.

Chin up