Welcome To Our New Discourse Site

Were you a member of our old Rare Diseases Support Community site? Simply LOG IN with your old user name or email address and click on “Forgot password”. We will send you a link to claim your old profile.

First time visitor? Please go to our Main Page. We are part of the Ben’s Friends Network, whose mission is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. We’re glad you’re here